We've heard back from Cheguy and I'm deciding to post it here in full. It appears that he's used a Spanish to English translator of sorts so please keep that in mind as you read through it:
Dear Rick, I am sending this letter to let you see firsthand what is my personal situació, your mother told me that your blok was wearing something on my situation. I think this letter is a potted history of my life. And I would like the hang on your blok, maybe someone else in one way or another interested, many thanks to all, god bless you.
I'm waiting to go into hospital again for further testing me a kiss
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I am José Luis Merino, the purpose of this letter very simple, I tell you what my current situation first hand.
First I want to wholeheartedly thank my family in the U.S., which from the first minute they hear of my situation turned in seeking a solution to my problem. Thank you.
My birth date is April 20, 1969 in Barcelona, a few days of life, I found a very serious congenital heart disease and complex. The truth no one thought they could never get ahead, well actually only my mother. God bless.
In 1969, children like me who were born with a different heart practically settlement and we were often the testing ground for techniques that are practiced today in congenital heart disease. Thanks to a group of medical pioneers, innovative surgical techniques, and why not, ahead of their time, plus the new pharmacopoeia. People like me keep going. About 90% of cardiac go ahead after the first interventions in ten years we will be an epidemic.
To understand my situation need to know how I am, who I am as a person as a human being. Since my birth, I have struggled to move forward, grow, build and be a human being who I am today, despite all the situations and obstacles that life had prepared me.
A restless, feisty, hardworking, perfectionist, with a touch particularly positive, pragmatic and sarcastic toward life, "Life is now, I write these letters, within fifteen minutes an uncertain future. Survivor of a thousand battles and war, but not a victim, my illness is only an accident in my life and my family. Where normal for it takes nothing more than hollow for me to leave, and that lately she occupies my whole being. It is not easy to fight when mind and body go together.
Since my main aim has always been to stay alive stay alive in order to appreciate and enjoy the different situations that life has offered me, my childhood, my youth, my youth, my relationships, my friends, my marriage and as not more important and wonderful could happen to me my two children. "Just because these two moments in my whole life has been worthwhile, so much struggle, so much effort, so many tears, night in the ER, ICU, hospital nights, loneliness, grief and tears." On behalf of my family and my wife, who always have been unqualified and will be in the worst moments of my life, thanks to them all.
I grew up with many other shortcomings. After my experiences and experiences, there were many wounds, not only physical but also emotional. Are the traces of a life marked by limitations, loneliness, misunderstanding, fear, anxiety, lack of information, uncertainty of death or a life expectancy cut a decent quality of life, rejection of a society that sees me and does not understand us. Everything is not absent.
That I am part of the living history of medicine and the first survivors of congenital heart diseases intercepted in Spain, some 50 years ago. I have come to adulthood thanks to the expertise of a professional who once held a Bandig to the lung.
I always thought that my heart made me special, a different child, a freak of nature or accident, cardiac unique in its complexity. And it is well confirmed by the doctors themselves, may live in the world 30 people around the world like me, like little special and make us worthy to know or inquire about us. In Spain I am informed that the ministry of health there are two or three people (transposition of great vessels, single ventricle, inter-atrial communication and pulmonary stenosis).
For the first time I feel physically and mentally helpless, many doctors who say they do not know how I'm alive, my heart is incompatible with life, others say they do not know how to deal with this heart disease, and the most cruel are those say that when the time comes, they know they will do, but I'll be your guinea pig. . I think I deserve all medical, surgical, psychological, you may receive, deserve my case is unique, "the team of inborn and transplantation of our country knows.
It seems that day comes, are increasingly congenital cardiologists, pointing to a heart transplant.
And I need all the help you can give me god, people, hospitals, doctors, organizations, media. For I am ordinary people, anonymous calls as little advice and help. And a second chance to proceed. If anything the American people is reflected in the rest of the world, is proud of their generosity for their sensitivity and support in social and personal worst.
My philosophy of life has always been the day to day, without casualties, or complexes. As I say, or knees, or behind, above all, to anyone. I'm a survivor, a fighter who tries to move forward. And I need all the help and luck in the world. Thank you all for reading these letters.
Note. Help Help Please call me thanks for your time.
José Luis Merino Mendez aka Cheguy
Again, if anyone's able to help in some tangible way, I'm hoping you'll contact me at my email address.
I'm also hoping however that you'll pray.
Thanks much.
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